Friday 11 January 2013

Vote for this please!

Dear lovely readers, please can you vote for this for my friend in a competition she's in. It's an over 60s art contest. She's submitted five pieces of work, four paintings and this sculpture. We're hoping we can get the sculpture a lot of votes.

You can place three votes; you get to say which piece of art you think should be first, second, and third place. Obviously I've placed all my votes on her pieces. I only request that you place one for this piece .. do as you wish with your other votes ... though there are hundreds of bits of art to go through!

To vote, enter your email address and a password. They'll then send you an email in which you click on a link to go and place your votes.

Pretty please :)



Wednesday 9 January 2013

Eek! My ESA50 form's late!!!

Are you filling in the horrible ESA50 form, hoping you'll be able to claim Employment & Support Allowance? Do you have that horrible big black line on the calendar looming imminently over you? Don't worry. You can rub that line out if you have M.E. or some mental health conditions (sorry, but I don't know which ones).

This subject keeps coming up recently. Mostly because people have still only been given four weeks to fill in their ESA50 despite Christmas and New Year being in the middle of it. A lot of people are running late with their forms and panicking. I knew I had read somewhere that people with M.E. needn't worry about late forms, but I couldn't remember where. Then I found that I had saved the information to my computer ... hoorah ... but doh! 

So, I apologise, I do not know where this information came from, but do please feel free to use it. Personally, I would not recommend running anymore than a week late with your form. If you are returning your form late copy and paste the information below into a document and submit it along with your form and a letter explaining your reasons for lateness.


DWP will insist that they do not give anyone a time extension for completing the ESA50.

This is contrary to their own guidelines. In a letter to the Countess of Mar dated 21 November 2011 regarding the Incapacity Reference Guide, and the flagging of ME/CFS along with mental health conditions, the DWP stated:-

"Therefore, for the avoidance of doubt I can be clear that the Department does not classify CFS/ME as a mental health disorder. The asterisk next to CFS/ME in the Incapacity Reference Guide (IRG) is not as an indicator of its classification, but rather to alert decision makers to the fact that a proportion of people with CFS/ME have symptoms related to altered mental function. Mental health condition and those that have mental function impairment as a feature are highlighted in the IRG so that appropriate safeguards can be put in place. These safeguards include not automatically rejecting a claim to benefit should an individual fail to return the related questionnaire, together with procedures for additional contact with the claimant during their application if required."

It may be useful to quote this to the DWP when you ask for an extension, in any case ensure that they make a note of your conversation on your records, or perhaps it is better to put it in writing to them, so that, if ATOS refer your case back to DWP as a non-returned form, then they should have to take this information into account before making any decision to end your claim.

The incapacity reference guide is here:-

http://www.hmrc.gov.uk/manuals/spmmanual/spm50600.htm

The correspondence with the DWP regarding ME is found here:

http://www.meassociation.org.uk/?p=9327

Should anyone know where this information came from, please let me know so that I can give the relevant credit.

Saturday 5 January 2013

YES!! Knighthood!

I'm writing just a short post today, mostly in reference to my most recent post. I provided you the link for the petition against Dr Wessely's proposed knighthood, should you wish to sign it, and explained why I find myself a little reluctant to do so.

Someone came up with a beautiful alternative. Well, they didn't intend it to be an alternative actually, they suggested both signing that petition, and ...  doing this:


As I understand it, when someone is proposed for a knighthood, they are compared with others in the same field who have also been nominated. I could be completely wrong in that, so don't quote me on it, but I think that is what I have read somewhere.

My immediate reaction was to suggest the wonderful journalist, Sonia Poulton, for her hard work writing about M.E., describing it's difficulties so perfectly within the public eye. She's become patron of the Cheltenham "Fibro, ME/CFS Babes & Guys!" group you know! I would also personally include her awesome work raising awareness of how screwed up the benefits system is. You can read some of her work:
here
BUT, I have a sneaky suspicion that because Sonia Poulton is a journalist, she would not be considered comparable to The Weasel. In fact, she's raising awareness of how treacherous M.E. is, when he is (supposedly) performing research (and downplaying how serious it is). Plus, it is not just M.E. alone that he is being considered upon.

Someone else has suggested recommending Professor Hooper for knighthood instead. I felt a little embarrassed that I had never before heard of Hooper, so I did a little research. A few clicks later I had found that he has worked on M.E. (CFS) and Gulf War Syndrome amongst other conditions; so he is directly comparable to The Weasel. He is the Medical Advisor to the Grace Charity for M.E.; I would be very surprised if any M.E. organisation is associated with Wessely (unless it is one that he has created). Hooper has also stood in direct opposition to Wessely on his stance towards M.E./CFS, which of course will make him a very attractive alternative to many. I did also find, however, that there has been a review into him, and that there are also people who dislike him as strongly as I and many others dislike Dr Weasel. Personally, I don't feel that I have found out enough about him to recommend him for knighthood myself. But I would certainly say 'yes' he's a good alternative to ... you know who ... and that if you wish to recommend someone to be in direct opposition, then Professor Hooper is probably the right person for the job.

I, myself, think I will stick to recommending a certain journalist. I have a feeling she might turn down the post if she was offered it. That, however, would be as worth seeing, as seeing her receive it!

So, how do we go about recommending someone for a Knighthood? It's actually very simple.


There is a choice of format in which you can download the form. I would suggest PDF, as most computers have a PDF reader. You then print the form out, fill it in, and post it off to the address on the website. Couldn't be simpler, could it? Well yes, since the form is rather long and complicated. 

... and sitting on my desk still waiting to be filled in.

Tuesday 1 January 2013

No Knighthood!



"We the undersigned wish to make it known that we believe the award of a knighthood to the internationally maverick and outspoken psychiatrist Simon Wessely, whose views on several serious illnesses are seen to be patently wrong, and are widely abhorred by the experienced patients he purports to want to help, brings the whole honours system into disrepute, and should be withdrawn before the progress of real science, makes finally clear to all, the folly of his particular and peculiar sickness beliefs."

I have mixed feelings on this petition. I've not signed it, and I'm not going to.

I do not like Simon Wessely anymore than the next person with M.E.. I do not like his views, I don't like his trials, I don't like the way in which he's manipulated the medias view on our illness, and I do not like the way in which he's labelled himself as a victim because he's been criticised. Every scientist receives criticism; I've never heard of any of them claiming victimisation because of it though. Wessely is a nasty piece of work whose first priority is his reputation, and second priority is protecting his research. His patients don't even factor.

So when I see that he is nominated for a knighthood I am not happy. Not impressed. It shouldn't have happened. As it happens I actually like our Queen. She gives off good vibes. It's not her fault that she was born into monarchy. I certainly don't support the abolition of the monarchy. I feel very sorry for her that she has to be in the same room with The Weasel though. I would like to think that there was some chance of her doing the research behind knighthoods, but in reality someone else will do that. No doubt it Simon minions who nominated him. It certainly wouldn't have been any legitimate M.E. doctor, or an M.E. patient.

But I can't make myself sign it. Professor Wessley has gone out of his way to label people with M.E. as being crazy. He hasn't merely claimed that M.E. is a mental illness, but because people object they are crazy. He's over-exaggerated the number of people who complain, and the manner in which they complain. He overplays his hand. He knows he has more power than any of us will ever have. It must be fun to kick people when they're down.

I do not want my name associated with this petition. I don't want to be among those he sees as victimising him. I don't wish to give him that pleasure. He doesn't know me from Adam of course.

The fact that the petition is worded badly is besides the point. I could pick it apart easily, making it clear why it would never get anywhere, legally, but that isn't my point, unusually. The point is that the truth will out eventually. Wessely will be seen, by history, as a very nasty man. He'll be seen as someone who deliberately prevented very sick people from being treated. With any luck biomedical research will show this within our lifetimes, and have him called up on it. But again, not my point.

My point? What is a knighthood? These days it doesn't actually mean anything. It's an ego boost for him. It will mark him in history. And because of who he is, he will be remembered as being a creep. That isn't what he has aimed for, obviously, so by being knighted I feel he's stabbing himself in the foot really.