Shame

I remember sitting in my bedroom as a teenager, and realising how fortunate I was to have been born into this country. We weren't starving, like they were in Ethiopia. We weren't at war, like they were in some parts of the world. We always had plenty of clean, fresh water available, and always had food on the table. Most people had a roof over their head, and those who didn't had help available. We had councils who helped people, unions that helped workers, there were safety nets in place for nearly every eventuality you could think of. We may be struggling in our every day lives, but we had it made! I realised this as a teen, and my ambition became to help people world wide who weren't so fortunate to have been born into a country like this.

Unfortunately, I no longer believe we are fortunate. I feel shame. Total and utter shame, at what this country is doing.

How much of that remains? When I try and tell certain people about the difficulties of being sick or disabled in this country, I frequently get a response along the lines of "At least you're not starving in Ethiopia". Why is it more acceptable to starve here?

Are people really starving here? YES! 

The government has pretty much gone out of it's way to eliminate any form of income for people who are sick or disabled, and have made it very difficult to get by for those who are simply working class at the minimum wage end of the spectrum. If you weren't born with a silver spoon in your mouth they see you as scum, and we are to be treated as we deserve! 

Take my own example. I cannot claim Contributions Based Employment & Support Allowance (CB-ESA), because the DWP (Department for Work & Pensions) paid my NI (National Insurance) stamp last year. Their type of stamp does not count towards benefits, only towards your pension (should you be unlucky enough to live that long). I cannot claim Income Related ESA, because I am living with someone who earns over £8000pa (the threshold is somewhere around 7000). His outgoings are not taken into account. So, the fact that his outgoings are nearly equal to his income is irrelevant. He cannot afford to support me. As such, I am currently living off hand outs. They won't last forever! There is no point at which I can suddenly claim CB-ESA, as while I'm in this situation the DWP pays my NI, thus cancelling out the possibility indefinitely. It also seems that I will be unlikely to receive DLA; the DWP are putting off giving me a decision month after month. My suspicion is that they are waiting for PIP (Personal Independence Payment); under which I definitely will not qualify. There are no other benefits available to me, no safety net to catch me, nothing. I'm not the only one, there are hundreds, probably thousands of people in this situation across the country. The inevitable is that these people will become homeless, probably starving to death.

DLA was never intended for people to live on. It was intended to be some money that helped disabled people live a normal life contributing to the community. Something those who designed PIP seem to have forgotten, despite it's all encompassing name: "Personal Independence". They have made it virtually impossible for people who are genuinely disabled, to claim. For example, one of the descriptors is that claimants be unable to walk 20m, where it used to be 50m. They have cut down the criteria similarly throughout the assessing process, and have taken out some things under which people used to qualify. They've introduced descriptors, suggesting it is now another tickbox computer based system, similar to that of ESA that assesses people.  So, unless you are wheelchair bound, and almost totally unable to do anything for yourself, you're unlikely to receive PIP. Genuinely disabled people will lose their DLA. For many this means losing their car; that is their ability to get to work. Similarly for some it's losing the money they use for public transport. For some it is money used to bring in respite carers. So many people will be very suddenly thrown into situations where life is totally unmanageable.

And yet suicide is illegal.

It isn't just DLA though, please do understand that. ESA has recently changed, making it more difficult to receive again. More changes are being brought in, in April too. At present, when you apply for ESA, if you are turned down you can appeal. You still receive some money (£70pw - the Assessment Rate) until your reconsideration, appeal, or tribunal are finished. The Assessment Rate is being scrapped. You will no longer be allowed to appeal straight away, but must have a mandatory reconsideration first. To be fair, many decisions are overturned at 'reconsidertion', BUT, the DWP has no time limit on how long their reconsideration's take; so people will be left without money indefinitely. They say that they will be processed as quickly as possible. 

No comment.

What happens when someone has no money? Probably first of all, they go hungry. The government has at least seen fit to open more food banks since they've been in power (that in itself shows us that they knew what they were doing to us); but the housebound and bedbound can't get to food banks! And what of those who have specific dietary requirements (I'm talking Coeliac, etc, not vegetarians)? The next thing that probably happens is being unable to pay the bills. The phone gets cut off, then the electricity and gas. Their landlord may be understanding to start with, but if they're sitting in his property not paying any rent, he's losing money, so at some point they get turfed out of their home. Homeless, starving, and ill or disabled. That's what our government is aiming for!

At the moment, most people can claim a Crisis Loan when they find themselves in that sort of situation (not I, due to the other half's income). So what's the government's next step? They're removing Crisis Loans too!

They're also removing Legal Aid for people going to tribunal over their ESA, DLA, or PIP, decisions. In case you're unaware, there is a long convoluted system involved here. If someone disagrees with the decision made on their application (which they usually do, since the DWP deliberately underestimates people's needs), they can appeal. The appeal goes through reconsideration, at which point it can be changed, but if it is not it goes to Tribunal. If they still disagree with the decision then they can take it to the Upper Tier Tribunal. At this level people really need legal advice, and preferably legal representation, if they want to stand a chance of winning their case (they put people through all of that, just for £90pw). And that legal advice will no longer be available; because the government don't want people to win! They don't want to spend their money on the plebs.

There's more. Much more. The so called "bed room tax" for example. I'm so sick of it. It has now got to the point where I think we'd all be better off in another country. If there was a country open to receiving us, I have no doubt that there would be a mass exodus of sick and disabled people from the UK.

I'm actually kind of surprised that there has been no attempt on the lives of any of the politicians involved with all of this change. Yes, by definition the sick and disabled would be unable to carry out such an act, but we're not the only ones who are totally incensed by it all.

I wonder whether they realise that they are backing everyone in to a corner. It's basically going to be a choice between a life of crime, a life on the streets begging, or suicide. All of which are illegal. I suspect it's the latter that they are waiting for, but I also suspect it's the life of crime that most will turn to.

500,000 to lose DLA

Those of us who have been watching the tide turn are well aware of what switching from DLA to PIP will do. Benefit reform has been brought about partly because the government has painted a picture of those on benefits as being scroungers, malingerers, people who generally don't want to make an honest living ... the lowest of the low.

Public perception is that the benefits system is being reformed because of benefit fraud. Yet, the actual statistic for Disability Living Allowance fraud most recently released was 0.5%. Old Joe Blogs is going to look at the governments statement that 500,000 will lose DLA, and believe that 500,000 people have been claiming fraudulently. As such, I'd like to do a little maths with you.

DLA fraud = 0.5%

In Joe Blogs mind, 0.5% = 500,000

In order for that to be the case, the total number of people claiming DLA would be 100,000,000.

So, dear Mr Blogs, before you jump to any conclusions, please think about the reality of more people than make up the population of the UK being able to claim DLA. The government is not just targeting benefit fraud, it is targeting people who are genuinely sick and disabled, and taking away the little amount of money they rely on.

DLA is supposed to enable people to live a life contributing to society, whether that be by working, or simply by being able to shop in their local stores instead of online. By removing so many people from DLA (or PIP) the system will crumble. People who have relied on Mobility cars will no longer be able to get to work. People who were able to go into their local high street throughout the day will no longer be able to do so ... more shops will close!

It's a small minded way of recovering a tiny amount of money, that could be so easily regained if the big mouths, further up the ladder, actually paid their taxes.

The truth about Welfare Reform

I really haven't got the brain to actually write much about this article. Sonia, as usual, has written beautifully. Perfectly. She's pretty much summarised everything I've been trying to get at in my posts regarding welfare reform. Please read it. Please share the link for this article with your friends, family, colleagues, etc, and anyone who is touched by it, please sign / ask them to sign the document linked in my previous post. It's a desperate situation, and I'm desperate for everyone to know ... and those who need to, to change their attitudes. So, here's Sonia's article ...

Suicide training in Job Centres? Cancer patients scrubbing floors? Welcome to Cameron’s Brave New World


So, the Welfare Reform Bill - the part that refers to sick and disabled people - limped bruised and bloodied over the finishing line in Parliament last week. The various acts of treachery and betrayal it contained making its final journey into law once it has been granted the Queen's royal assent.

It was inevitable, really, and disability campaigners who, for the past two years, have fought feverishly, and quite literally at times from their sickbeds, to oppose it, resigned themselves to the fact that nothing short of a Biblical-type miracle would reverse their fate.

However, it is only now that the full implications of what these reforms - or brutal acts of savagery as I prefer to call them - will actually mean to millions of seriously vulnerable people in our country. And it is an ugly realisation.

This is how I see it. In the life of most every politician there is one, or several, events that mark out their ‘D’Oh moment. This is not based on severity but on a feeling it should not have happened at all.
David and Samantha Cameron themselves claimed Disability Living Allowance for their child

Brave New World? David and Samantha Cameron themselves claimed Disability Living Allowance for their child

For examples: Nixon - Watergate. Kennedy - Marilyn. Major - Edwina Currie. Tony Blair - Iraq. You get my point?

Well here’s my ‘D’oh moment prediction for David Cameron. He will be remembered as the Prime Minister - without a mandate, remember - who attacked the sick and disabled of our country with a vehemence beyond human comprehension. And when you think that he had a disabled son who tragically passed two years ago, well, then, it beggars belief even more so.

So, to bring the story up to speed.

Margaret Thatcher and Tony Blair’s Governments set the blueprint of the welfare reforms that David Cameron has just forced through Parliament. And when I say forced I mean the type that requires extraordinary levels of subterfuge and manipulation to shoehorn into place.

He ignored panels and focus groups, charities and campaigners and he overturned the Lords' by invoking an archaic law of “financial privilege”, which allows the Commons the last say on money matters.

Such was his unstoppable zeal to push through reforms - contrary to all advice, personal and professional - that you had to wonder if it was a psychological issue driving him on.
Talk to any disabled or sick person right now and there is a word that crops up more than any other, a running thread central to what they are feeling. It is this: fear

Talk to any disabled or sick person right now and there is a word that crops up more than any other, a running thread central to what they are feeling. It is this: fear

Perhaps denied grief at the death of his disabled son. Bereavement affects us on an individual basis and there is no guarantee that it will manifest in logical ways.

So these cuts will now become law and, as a nation weeps, the details are sorrowful when applied to reality.

Here's an example. Any disabled or sick person who has been given more than six months to live - and is unable to financially support themselves - will be sent out to work. If they refuse, or back out of a scheme, then they will be subject to benefit sanctions.

This, it must be noted, is extraordinarily punishing towards disabled people when we consider how DWP boss, Chris Grayling, treats others involved in 'Workfare' type arrangements.

Consider, if you will, how he was forced to back-track last week following pressure from campaigners and businesses. After a summit designed to get more businesses on board the Workfare bus, he announced that he would remove the threat of benefit sanctions for unemployed young people on job seeker allowance who drop out of the scheme.

Wow. In what world can young, fit people be given protection that we deny our most vulnerable? That's more suited to an Aldous Huxley script than real life.

Next up in the reforms will be an increase in multiple testing of patients, including those with Alzheimer's and Multiple Sclerosis, to see if they are fit for work. They will be tested repeatedly. It will cost a great deal of money to administer and it will wear already sick people to a pulp.

And as for children who dare to be born disabled, well that assistance previously available to them has been wiped out in Cameron's Armageddon on the poor.

Sue Marsh, one of the co-authors of 'Responsible Reform - The Spartacus Report' - which launched a worthy counter-attack to the Coalition's WRB measures said: "We begged for £11 Million to protect profoundly disabled children into adulthood, but nuh-huh."

And yet we, as a nation, manage to find millions of pounds to pay Cameron's army of advisers and assessors including the allegedly fraudulent activities of back-to-work company A4E which was set up by the Coalition's 'families czar' Emma Harrison.

Could we consider this? If this is really a cost-cutting exercise to fill the billion pound deficit, when is the Coalition going to start from within? The DWP spend over 25 thousand pounds per month on travel, hotels and stationery - surely there is something that could be curbed there rather than taking 20% from disability which, according to their own figures, only has 0.5% of fraud.

I'm writing this and I'm struggling to believe it at the same time, which is quite a conflict.

With all this insistence of paid employment for the terminally ill (despite the fact that we have almost 3million unemployed) it is no wonder that job centres, up and down the land, have been issued with details on how to handle suicides in their establishments. Something, apparently, they are anticipating rather more of since the WRB was voted in.

I think the expression ‘you couldn’t make this up’ is appropriate here.

Perhaps the aim is to finish off the sick and disabled sooner rather than later. Well that way, at least, you get to save on the medical bills of our increasingly privatised National Health Service.

After all, what use are such people to our society?

There is a notion, false obviously, that disabled and sick people make no contribution and only ‘drain’ the system. What short-sightedness. Such a statement assumes that only paid work has social value.
Legacy: Will Cameron be remembered as the PM who attacked the sick and disabled of our country with a vehemence?

Legacy: Will Cameron be remembered as the PM who attacked the sick and disabled of our country with a vehemence?

What about other contributions including volunteer work - from charity shops to hospitals and schools? These roles are frequently staffed by disabled people, too.

Ironically, a number of disabled people will now be removed from such vital community roles and placed in a Workfare scheme - free labour to private businesses - so that they may mop floors, wash dishes or clean toilets. Ain't life grand?

Disabled people, like the majority of people, want to work but they also have to take account of how their illness or disability will affect their working life. Unlike the able-bodied and healthy, they do not know which turn their well-being will take when they wake in the morning. Whether they will be able to physically climb out of bed much less make it to the factory floor.

People on disability benefit are not living it up. If only. According to the group Family Action, some families survive on less than two pounds per day. Quite a contrast when you compare it to the Peers in the Lords who receive 300 a day just to show up and then get to enjoy smoked salmon in the tax-payer subsidised cafeteria (cost to the taxpayer is a mere 1.44million a year. bargain). Oh how the other half live.

So where will disabled and sick have to turn to now in their greatest hour of need? Well they can forget the Social Fund because that was viciously axed in these reforms, too.

For millions of people, a Social Fund loan - yes it was repayable, it wasn't a gift - was the difference between sleeping on a bed or a floor. The MP's who voted to banish this have no understanding of such destitution and poverty. Not while they are able to subsidise the purchase of their country mansions with their parliamentary expenses.
Defending himself: Ricky, seen here in a photo he posted onto his Twitter page, said he never meant to use the word 'mong' to mean Down Syndrome

There are those who openly mock the disabled: Ricky Gervais's 'mong' comment says more about him than anything else

People are already impoverished and it is certain to get worse. I read one online disability forum where a woman with breast cancer and liver disease didn't know where she was going to get the ten pound needed for travel to hospital for an appointment.

Unlike David and Samantha Cameron, who claimed Disability Living Allowance for their child - and absolutely did not need to - many disabled now must adjust to seriously reduced circumstances since Cameron attacked DLA in the reforms and will replace with the patently detrimental Personal Independence Payment (PIP).

The transfer from DLA to PIP will remove help from 25% of those in receipt of the benefit now, despite the fact that this is a benefit that helps some disabled people to stay in work.

And therein lies much of the problem with these reforms. They lack joined-up thinking. They don't appear to have been thought through to a satisfactory end.

Take for example the perception within the Coalition, the DWP and the care services that everyone has a spouse and family to fall back on but that is not the reality for many people.

As a consequence of these cuts, more disabled people will find themselves in bedsits, or hostels or on the streets. There is a significant proportion of people with mental health issues and learning difficulties who find themselves in this situation already and it is certain to increase.

Well then perhaps it's time to resurrect another part of our history - seeing as David Cameron is clearly following a Dickensian blueprint for our poor - the workhouse. Yes, that testament to our proud, class-conscious society.

Talk to any disabled or sick person right now and there is a word that crops up more than any other, a running thread central to what they are feeling. It is this: fear.

Fear of losing their homes when they no longer have DLA to top up their Housing Benefit shortfall where, thanks to the previous Conservative Government, private rents are uncapped and extortionate. Fear of losing their carer because there will be no allowance for them. Fear of being bed-ridden for the lack of anyone to lend support. Fear of losing ramps and assistance to get in and out of the house. Cold fear that this feeling of being unwanted and excluded from society is how it is going to be for the rest of their days.
With all this insistence of paid employment for the terminally ill it is no wonder that job centers, up and down the land, have been issued with details on how to handle suicides in their establishmentsv

With all this insistence of paid employment for the terminally ill it is no wonder that job centers, up and down the land, have been issued with details on how to handle suicides in their establishmentsv

In internet circles, where many disabled campaigners congregate, names are bandied around of those who have committed suicide through fear of going cold and hungry and feeling that they are increasingly a burden to society.

At the last count there were some 103 names linked to such suicides and I have actually heard people say that they would consider suicide as a way out of this constant state of anxiety and despair.

What alarms me is how this dispassion towards people with disabilities appears to be spreading from the Coalition down.

There are commentators who openly deride disabled people (Rod Liddle's ill-informed and hate-inciting rhetoric - a type of drunk-sick on paper - in a tabloid was one, but he's not alone). There are also comedians who mock disability. Ricky Gervais' 'mong' impersonation surely says more about him than it does about anyone else (although to be fair, Ricky has since claimed this to be naivety and that he was unaware that the term was still used to describe disability).

There is also, according to recent figures, a 40 per cent increase in disabled attacks in the past year alone. Hardly wonder when the general public are constantly being goaded with the idea that we are 'mugs for supporting scroungers'. Talk like that tends to breed resentment.

And then there's this. An occurrence that should serve to alarm us all.

The British Medical Journal published a paper from Oxford University don Francesca Minerva, a philosopher and medical ethicist, who argued that doctors should have the right to kill newborn babies including those born with disabilities because, according to Minerva, a young baby is not a real person and so killing it in the first days after birth is little different to aborting it in the womb.

But here's what gives me hope. Ever since last week's rubber stamping of the Welfare Reform Bill, disability campaigners have begun a serious fightback and are preparing, like an army, to overcome this wickedness that has been wrought on them. Information is being compiled and exchanged, despite ill-health and disability I have never witnessed such a bank of people determined to overcome the odds piled on them.

Let us not forget, and despite the mainstream media's best efforts to convince us otherwise, this is not about the neighbor with the apparent bad back who plays golf at weekends (who can also be genuinely disabled but even disabilities allow for better days when activity can increase), but about some of the most horrendous acts against truly vulnerable people.

This may not affect you. Perhaps your parents, or yourself even, have a sufficient financial cushion not to worry about that. What an enviable position to be in.

But what about those less fortunate?

I believe - and I’ve 47 years of a colourful life to base this judgement on - that the UK is comprised of essentially decent people. Citizens who care enough to see beyond their own selfish existence.

The people I know don’t want to be - and neither are they - the type of people who turn their backs when the going gets tough. They actually seek a more compassionate life on earth where we are prepared to support and contribute to each others lives.

In is unconscionable that these disability reforms have been allowed to happen. To be fair, we all knew it was a Conservative agenda, but a Liberal one as well? Goodness how Nick Clegg can ever recover from this I do not know. My imagination is not that good.

So the Welfare Reform Bill, after decades in the making, has finally come to pass. Oh, how proud are we as a nation? We did it. Gave those sick and crippled unfortunates a good old kicking. Let’s give ourselves a collective pat on the back for allowing this to proceed. Makes you proud to be British, doesn't it?